Number of people seeking help for long Covid doubles, charity says

Asthma and Lung UK warn that NHS services are failing to meet demand

Calls for more investment in tackling long covid in Scotland
Author: Danielle SaundersPublished 15th May 2022
Last updated 15th May 2022

The number of people seeking help for long Covid has doubled, according to the charity Asthma and Lung UK, it’s warned that NHS services are failing to meet demand.

The organisation said around half a million people have visited its long Covid advice web pages or called its helpline for support in the last six months.

The number of people viewing the web pages nearly doubled from September to March, as cases of Omicron rose across the UK, it said.

How many people have long Covid in the UK?

Latest figures from the Office for National Statistics (ONS) show that an estimated 1.8 million people in UK households (2.8% of the population) were experiencing long Covid as of April 3 - the most recent data available.

In these self-reported cases:

  • 382,000 (21%) first had or suspected they had Covid less than 12 weeks previously.
  • 1.3 million people (73%) first had or suspected they had Covid at least 12 weeks previously.
  • 791,000 (44%) first had or suspected they had Covid at least one year previously.
  • 235,000 (13%) first had or suspected they had Covid at least two years before.

What are the symptoms of long Covid?

Fatigue is the most common symptom reported (51% of those with long Covid), followed by shortness of breath (33%), loss of sense of smell (26%) and difficulty concentrating (23%).

Some 1.2 million people (67% of those with long Covid) say symptoms stop them doing some or all of their normal activities.

According to Asthma and Lung UK, many callers to its helpline are at crisis point, with some asking for advice on buying oxygen to manage their long Covid breathlessness. This can be dangerous if it is not issued on prescription.

The helpline has also taken calls from people wanting information on private healthcare providers because they are struggling to get help from the NHS.

What’s the waiting list time for long Covid clinics?

The latest data from NHS long Covid clinics in England shows 30% of people waited more than 15 weeks for an initial appointment as of March/April.

Data on the overall number of people still waiting for first appointments is not published by the NHS.

Asthma and Lung UK said many more thousands of people could be waiting to access care.

‘Nearly two million are living with long Covid’

Sarah Woolnough, its chief executive, said: "As we near the grim milestone of two million people living with long Covid, there is still a dismal lack of treatments for this disabling condition, which is leaving people fighting for breath and devastating every aspect of their life, health, work and relationships.

"Coupled with a lack of support and long wait times for specialist care, hundreds of thousands of people are turning to charities like Asthma and Lung UK, desperate for vital advice and support.

"With cases only rising, the problem is not going to go away.

"The Government must invest in more research into possible treatments and staffing for long Covid clinics to help people with this new and unpredictable condition to get their lives back on track."

Covid-19 FAQs

What is Covid-19?

Covid-19 emerged as a virus in December 2019 as the first cases are reported in Wuhan, China. Scientifically known as SARS-CoV-2, the virus created a global pandemic as it began to spread around the world. Symptoms can range from very mild to severe, causing death in some cases. Some people are completely asymptomatic and do not realise they even have the virus.

Has there been a virus like this before?

The SARS pandemic in 2003 was similar to Covid-19 in that it was also caused by a coronavirus. SARS stands for Severe Acute Respiratory Syndrome. The global outbreak of SARS lasted from 2002-2003, infecting over 8,000 people and killing 774. Covid-19 and SARS are both respiratory illnesses, but SARS was much more deadly and less infectious.

What are the main symptoms?

The NHS say the main Covid-19 symptoms are a high temperature, a new and continuous cough and loss or change to taste of sense or smell. NHS advises people with Covid-19 to take plenty of rest, drink lots of fluids, and take paracetamol for a high temperature.

What was the Government reaction?

The UK Government announced the first of several lockdowns in March 2020. By the end of the month, more than 100 countries around the world introduce full or partial lockdowns, preventing people from going to work, restricting everyday tasks and affecting the livelihoods of billions of people globally.

Which countries have been worst hit?

During the first year of the pandemic, the US recorded the highest number of Covid-19 cases in the world and the most deaths, reporting an unprecedented 100,000 new cases in one day on November 4th 2020. Thousands of new cases were recorded on the same date in India (46,000+), the United Kingdom (22,000+), Brazil (17,000+) and Mexico (5,000+), while Ireland records less than 1,000 (578). Hundreds of other countries also reported a high rate of infection.

How have vaccines fought against Covid-19?

Vaccines began being approved for use across the globe. By January 2021, the UK approved the use of three different vaccines. The Pfizer-BioNtech vaccine, Oxford/AstraZeneca vaccine and the Moderna vaccine are rolled out to the public, with older people and those with greater health concerns getting priority. In April 2022, just under 53 million people had received at least one dose of the vaccine.

What are new Covid variants?

Four new variants of Covid-19 were discovered around the world. Beta was found in South Africa, Gamma in Brazil and Delta in India, while the Alpha variant was first located in Kent, UK. New variants are not likely to make someone more seriously ill than Covid-19 would, but variants like Delta have a higher infection rate, meaning it can be more easily spread.

The Omicron variant was first detected late 2021 in South Africa. Since then, it has become one of the most dominant variants in the world, with its own sub strains - BA.4 and BA.5.

You can hear all the latest news on the hour, every hour.